Anxiety: Parenting a Child With Disabilities

Like I’ve said before, parenting is a tough job. It’s the most demanding, relentless, thankless job I have ever had. As a parent of three very different children, I need to parent each one differently because of their age, their needs and their personalities.

I’m an anxious person. I didn’t come into the world as an anxious person, but this life has turned me into one. I used to be a carefree child, happy, not really worried about the day to day. I had faith that it would all be OK. Then life happened. My father was diagnosed with cancer when I was 11 years old. Then with cancer again when I was 14 years old. Eventually, he passed away when I was 20. My life crumbled and was never the same again. Anxiety set in and it never left me.

Let’s fast forward to having my second child. A strong-willed, stubborn, loud, persistent child. She needs a lot and has no problem telling me how bad I am at meeting her needs. Yup. Good morning, sunshine.

Anxiety 
Anxiety — it’s what I feel each day. When I can’t stop the cycle from spinning, I become mentally and emotionally stuck. The fear and dread over things that are going to happen, things that can happen and things that have not happened. It’s also the fear that when things are going OK, they may not stay that way.

As parents, we worry. We worry a lot. We worry about the past, the future and the present. We worry every day. We worry about the little things and the big things. We worry that we are not doing enough, or we are doing too much, or we are trying too hard, or we are not trying hard enough — all within the same day or even moment.

We worry that we have offended someone with our passion to give our children the therapies, supports and services they need in school and in the community. We worry about saying yes or saying no. We worry that we haven’t researched enough or maybe we have researched too much and now, our brain hurts.

It’s endless and it sucks.

What Does Anxiety Look Like?
Anxiety doesn’t have a look. You can’t see it, but for the person who is anxious (like me), it’s like your mind slows down and speeds up all at the same time. It’s like your thoughts are running and frozen. It’s like your body is moving quickly but it hasn’t gone anywhere.
The stomach acid churning, the shallow breathing, the sweating, the light headedness, the clenched fists, the teeth grinding. It’s not being able to think but processing everything all at once. It’s wanting to hide but not wanting anyone to know anything is wrong.
And we can all relate to the before bed run through of the day that turns into the, “I didn’t do that correctly today. I didn’t say that well. I should have said this instead. I should have done this today. I didn’t do enough. I am not a good enough person.”

Little Ability to Believe in Others
Anxiety means that you may not have the belief that things will work out because you’ve had enough experiences where they haven’t. It’s sometimes not believing that another person will be able to help you or that you can find solace and protection in another person.

Little Ability to Believe in Yourself
Anxiety can also be the residual message that “you can’t” even though you can and you have. It’s that message that automatically is negative, intimidating and belittling. That internal voice that says, “That’s too much! You can’t get that done. You can’t say that. You can’t, you can’t, you can’t.”

Be Kind To Yourself
The holiday season is a tough one with all the lists of “shoulds” and things to get done because of a ton of self-imposed rules. And as a parent of a child with disabilities, you may feel the need to follow in certain traditions that are really causing more stress and distress for everyone in your family. It’s OK to let something go.

Be kind to yourself. Scratch off a few of those list items. Let it go. Give yourself time and space to recuperate physically and emotionally. Create new traditions that work for you and your family. It’s OK if you do things a little differently this year. As a parent of a child with disabilities, each day may come with a plan, but sometimes, it’s OK to abandon that plan and just wing it.

Photo fromPexels

by Dr. Liz Matheis and The Mighty
"The various psycho-educational testing Dr. Liz conducted on our son gave us critical clues about where his learning strengths and weaknesses lie so that his needs could be better addressed at home and school. Moreover, because of their warm, kindhearted personalities, both Dr. Liz and her associate, Stephanie, formed an immediate bond with my son. He eagerly looks forward to his weekly therapy sessions. We are so lucky Dr. Liz came into our family's lives when she did! For stressed-out families trying to help their children as best they can, she is a calming voice of reason!"
- Julie C.
"Dr. Matheis has a remarkable ability to understand the unique needs of her patients and address them constructively. She builds strong, meaningful relationships with patients and their families, encouraging trust and collaboration. When working with my son who struggles with autism-related anxiety, she created an environment in which he was able to calm down and open up to her in ways I had not seen before. She was able to reach him and helped him work through his crisis/problem. Most importantly, she empowered him to move forward."
- N.L.
"Dr. Matheis is amazing. She has tremendous resources and loads of energy. She is not willing to accept anything less than the most effective results for her clients. She made me feel as if my son was her top priority throughout the entire process. I would, without reservation, give her my highest recommendations.  Thank you, Dr. Matheis!"
- Anonymous
"Dr. Matheis has an amazing ability to read kids and connect with them. She has been an invaluable resource for our family over the past several years and has helped us with everything from educational consulting, to uncovering diagnoses as well as family therapy. Working with Dr. Matheis never feels clinical and most importantly, our children love and trust her. We can not thank you enough Dr. Liz!"
- Anonymous
"My teenage son had been seeing Dr. Matheis through his senior year of high school, as he was only diagnosed with ADHD at 16 years old.  Dr. Matheis came highly recommended from our pediatrician and she has done wonders for our son as well as our family, navigating new ways for him to deal with his diagnosis without the use of medication.  She taught him ways to organize himself and even when something did not work for him, she patiently continued teaching him new ways to keep himself on track.  She has also helped us as parents to understand how his mind works so that we did not continue to blame his lack of focus on him, rather on his unique way of thinking.  Thank you Dr. Matheis!!!!"
- LG
"Dr. Liz is the best! Our family was directed to her by our Pediatrician to assist with figuring out severe mood changes, severe anxiety, strange new fears and food aversion that had come onto one of our children literally overnight. After just a couple of visits, she suggested that the issues may actually be rooted in a physical issue and suggested we immediately take our child to be swabbed for strep, because Dr. Liz suspected PANDAS (a pediatric autoimmune disorder brought on by strep). The same Pediatrician that suggested Dr. Liz would not do the swab (they do not believe in PANDAS and we no longer go there) but I took my child to my doctor who did the swab and it was positive for strep. When our child went on antibiotics, within 24 hours all symptoms went away and our child was back :-) Dr. Liz then recommended a PANDAS specialist who helped us and our child is in complete remission and is happy and healthy. We are incredibly grateful to Dr. Liz for her knowledge of all things, even the most remote and unusual and for helping us so much! Thank you!"
- Anonymous
"The various psycho-educational testing Dr. Liz conducted on our son gave us critical clues about where his learning strengths and weaknesses lie so that his needs could be better addressed at home and school. Moreover, because of their warm, kindhearted personalities, both Dr. Liz and her associate, Stephanie, formed an immediate bond with my son. He eagerly looks forward to his weekly therapy sessions. We are so lucky Dr. Liz came into our family's lives when she did! For stressed-out families trying to help their children as best they can, she is a calming voice of reason!"
- Anonymous
"Thank you, Dr. Liz. Although we have told you countless times, it will never feel enough. You have listened when J could barely speak and continued to listen when he was sad, angry and confused. You've challenged him and directed us in our roles as parents. You've helped J face his fears while the list evolved and changed, and yet you've stayed committed to 'the course.' We pray that your children realize that time away from them is spent helping children learn and that vulnerability is a sign of strength and bravery."
- June I
"My son was admitted to an Ivy League school when only 2 years ago, you assessed him and saw his struggles, his Dyslexia. We are grateful that he no longer has to carry that deep feeling of inadequacy or shame that must have kept him so self conscious and from reaching his potential. He has the PERFECT program for him. He has A's in high math and economics. He became a Merit Scholar, a Boys State legislature, the HEAD captain of the football team and help a job ALL while studying and managing his classes and disability. I am PROUD of you, a young doctor, who knows and sees the vulnerability of children and helps them recognize "it's NO big deal" God bless."
- Anonymous

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