When we became parents, our children became the center of our universe. Our own self-care became secondary. This is especially true when we have a child with disabilities. Our child’s needs become primary, but one thing I know is that by not taking care of yourself, you will not be able to take care of your child.
How many times have you thought, “I should read/sing/talk to my child because it’s good for them,” even when you really don’t want to?
You may be experiencing some burnout. That is, you feel like you are tired — tired of thinking about what’s next, what if, what will I do when… and you’re managing all of these thoughts while trying to hold on to the guise of being a woman or a man, a wife or a husband, a daughter or a son, a brother or a sister and a friend. If your head is spinning, I understand. I hear you and I feel you.
I know when I get to the point where my head is going to explode with the constant running lists, when I’m checking those lists on my phone and I’m adding more “things,” I know I am good to nobody. Not my kids, not my husband, not my patients; no one, nowhere.
I know it’s really hard, and I combat the feelings of guilt of wanting to run away and hide in a corner for a few hours right along with you. I crave silence in my head, even when the room is quiet. I crave not having my name called for the 523.67th time in the past hour. I want to owe nothing to no one.
That’s just plain old burnout in its truest form.
When I get here, I know something has to give. I know I have to change my mindset and my routine in order to survive.
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