You’re a parent of a child with special needs. You have a diagnosis, you’ve sought treatment and you’ve been doing this for a couple of years, or maybe longer than that. As your child grows and his needs change, so does your stress and distress. You now know enough about your child’s triggers that you survey the environment and sit in anticipation of a potential meltdown. Or, you are managing the medical implications that come with your child’s diagnosis such as medication, ventilator, feeding tube management, and specialist consultations and check-ins. Or, you are thinking about the future and your child’s care as she becomes older; her education, her need for greater care when you can’t be the one to do it anymore.
You’re on the edge, often. You aren’t very good at ‘letting go’ because you don’t know what you have to accommodate, or change in your house, what you need to make sure you have with you when you leave your house in an effort to keep your child safe, regulated and calm. You are likely thinking about the future care of your child, and you’re just not sure what the game plan is going to look like.
You’re on the edge, often. You aren’t very good at ‘letting go’ because you don’t know what you have to accommodate, or change in your house, what you need to make sure you have with you when you leave your house in an effort to keep your child safe, regulated and calm. You are likely thinking about the future care of your child, and you’re just not sure what the game plan is going to look like.